Jameela Jamil talks about her battle with Ehlers-Danlos syndrome and shows off her 'elastic' skin to raise awareness for condition... after being trolled for speaking about her health
Jameela Jamil has talked candidly about her battle with Ehlers-Danlos syndrome in a bid to raise awareness about the rare inherited condition.
The media personality, 36, shared a lengthy video on Instagram on Tuesday, showing off the 'elasticity' in her face as a result of the syndrome, which affects the body's connective tissue.
Jameela said the condition is a 'dangerous thing to have' if undiagnosed and said she wants to raise awareness to help others.
'It's a dangerous thing to have': Jameela Jamil talked candidly about her battle with Ehlers-Danlos syndrome this week and showed off her 'elastic' face in a bid to raise awareness and 'save lives'
'Hi look at this, Jesus Christ, this is not an app or filter. It's my face, look at how elastic that is. The reason it's so elastic is because I have EDS, I have HEDS three, the H because I'm so hyper mobile,' she began in a clip.
'The joints, nothing bends the right way, everything bends the wrong way. I want to talk about it despite the fact people like to make fun of me because of my health.
'It's a serious condition and affects every part of your body and your mind and it's a dangerous thing to have if you don't know you have it.
'Hi look at this, Jesus Christ, this is not an app or filter. It's my face, look at how elastic that is. The reason it's so elastic is because I have EDS, I have HEDS three, the H because I'm so hyper mobile,' she began in a clip
Jameela, who has previously been trolled for speaking about her health, went on to speak about the lifestyle changes she has adopted to manage her symptoms, including not drinking alcohol or smoking.
She said: 'The way it affects bruising, bleeding, healing, if you want to have a baby... I don't drink, smoke, do drugs.
'I'm worried at the fact I'm disadvantaged with my health, it means you dislocate, your teeth are harder to work on, your struggles with migraines, random allergies.'
She explained that she wanted to openly talk about the condition in a bid to raise awareness and help others.
'The joints, nothing bends the right way, everything bends the wrong way. I want to talk about it despite the fact people like to make fun of me because of my health'
She continued: 'I'm not a doctor but that's why I want you to go to a doctor... if you're struggling with your joints and accidents all the time, please look at the symptoms.
'It really can save your life. The people who have it really look well. I love you, I'm with you, go get checked!'
Ehlers-Danlos syndrome is the name for a group of rare inherited conditions that affects the body's connective tissue.
In depth chat: In February last year, Jameela emotionally revealed that she once felt suicidal after she was accused of having Munchausen's syndrome by a troll
EDS can affect people in different ways. For some the condition is relatively mild, while for others their symptoms can be disabling.
In February last year, Jameela emotionally revealed that she once felt suicidal after she was accused of having Munchausen's syndrome by a troll.
Talking about the difficult time during The BodCon, a virtual body confidence conference, The Good Place star, 34, said that she 'didn't want to be here anymore' in February 2020 after she was 'mocked for her disability and mental health'.
Jameela said that she was 'totally suicidal' on her birthday and emotionally thought: 'What an ugly world, I don't want to be here anymore.'
Jameela was previously forced to defend her list of health conditions after being accused of having Munchausen's syndrome by a troll, which causes people to pretend that they are ill when they are not.
In the past, the actress has shared personal information about being partially deaf as a child, 'having cancer twice', being left wheelchair ridden by one of two car accidents and having Ehlers-Danlos syndrome.
She tweeted at the time: 'I'm tired of the bullying, the taunting over my mental and physical health.'
Speaking further at the virtual conference, Jameela said: 'Now a year later, I'm like the strongest and the happiest and the freest I've ever been.'
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